Front cover image for Case studies in ethics and HIV research

Case studies in ethics and HIV research

There has been a consistent interest in ethical issues arising in the context of HIV research. Ongoing international and multi-site studies and the continuing search for an HIV vaccine continue to prompt examination of how this research is conducted, how participants are engaged in the studies, and the obligations of the researchers to individual participants and their communities during the course of and following the conclusion of the research. Each chapter is authored primarily by one of the editors (secondarily by the other) and is accompanied by one to two case studies. Each case study has been authored by an HIV/AIDS researcher with experience in the subject matter of the chapter. The case studies will focus on an actual ethical dilemma encountered by the researcher, with suggestions on how it can be resolved. Each chapter addresses relevant issues and emphasizes particular ethical principles
eBook, English, ©2007
Springer, New York, ©2007
Springer e-books
Electronic books
1 online resource (xii, 343 pages)
9780387713625, 9780387713618, 9786611337636, 038771362X, 0387713611, 6611337636
Part I. Foundations. Human rights, international guidelines and HIV research ; U.S. regulations and HIV-related research ; The informed consent process ; Working with boards and committees: ECs, DSMBs, CABs ; Researcher-participant relations ; Researcher-community relations
Part II. Ethics and methodology. Recruiting for HIV-related research ; Case study one: Ethical issues in Internet-based HIV primary prevention research / B.R. Simon Rosser and Keith Horvath ; Clinical trials ; Case study two: Clinical trials and international ethics : preventing tuberculosis in Africa / C.C. Whales ; Observational studies ; Case study three: Challenges and strategies for personal safety in fieldwork / Nancy Méndez and Ingrid Vargas ; Behavioral intervention studies ; Case study four: Protecting the rights of human subjects who participate in HIV/AIDS research : balancing the ethics of Beneficence and Justice / Cheryl Gore-Felton & Michael DiMarco ; Ethical issues in multicenter/multisite studies ; Case study five: Managing multi-site collaborative research with community-based agencies / David Lounbury, Paulette Murphy, Janice Robinson, and Bruce Rapkin
Part III. Populations. HIV research with children ; Case study six: Informed consent and assent with juvenile detainees / Andrea Boyd, Geri Donenberg, and Kristi Jordan ; HIV-related research with cognitively impaired persons ; Case study seven: Balancing risks and benefits in research with severely mentally ill participants / Sana Loue, Martha Sajatovic, Nancy Méndez, and Ingrid Vargas ; Studies with minority populations ; Case study eight: Ethical issues : a case study involving a research study logo and African American families / Kristi Y. Jordan, Gerie R. Donenberg, and Andrea Boyd ; Research in international settings ; Case study nine: Ethical challenges in a multi-site international HIV prevention study with serodiscordant couples / Patricia Marshall, Janet W. McGrath, Moses Kamya, Andrew Fullem, and David D. Celentano ; Activity-defined populations ; Case study ten: Research relating to injection drug users / Linda S. Lloyd
Part IV. Looking towards the future. Training the next generation of researchers ; Case study eleven: Ethical issues in training the next generation of researchers / Oscar Grusky ; Training community ; Case study twelve: San Diego HIV/AIDS needs assessment / Daniel J. O'Shea